google-site-verification: googleaa199aff3eb51c00.html

We support Jenny and other children through outreach,
fundraising, and medical research.

Our daughter Jenny suffers from GM1 Gangliosidosis.

GM1 is a rare disease that aggressively degenerates children's neurological condition, and is ultimately fatal. It afflicts an estimated 1 in 200,000 children globally. 

We share her journey for awareness and to find a cure but we cannot achieve our goals alone. Find out how you can help.

All photography provided by Jenny's Family


Find out about our organization, it's mission, on-going  research, and other resources to learn about GM1.

Learn More →

Take Action

Ready to take the next step? You can become a contributor to our cause, or become a partner and participate yourself.

Find Out How →